While this is a scary topic, it’s important to remember that treatments for IBD are constantly improving. Stopping inflammation and preventing flare-ups is the ultimate goal in IBD treatment, and can help prevent complications. Keeping up with regular doctor’s appointments and taking care of health problems that crop up—even if they seem unrelated to the IBD—is also going to be an important part of staying as healthy as possible.
IBD and an Increased Risk of Death
People with IBD do have a greater risk of death than the general population (people that do not have IBD). This is perhaps not surprising, but it can be a bit confusing. There are a great many reasons someone with IBD might die: complications from surgery, a reaction to the medication, developing a serious related condition (such as liver disease or toxic megacolon), or from a completely unrelated condition. In some cases, it’s unknown if a person’s IBD actually contributed to their death or not.
What the Research Says
There have been several studies that have looked at the cause of death in people who have IBD. One study of 692 patients in Minnesota found that the overall life expectancy of people with IBD was “similar” to those who do not have IBD. For those with Crohn’s disease, the cause of death from gastrointestinal disorders and chronic obstructive pulmonary disease (COPD) were more common than in the general public. The authors insist that stopping smoking is crucial for people with Crohn’s disease to avoid serious complications.
For people with ulcerative colitis, there was actually a decrease in the deaths from cardiovascular disease. The authors explain that this could be from a low incidence of smoking in ulcerative colitis patients and low levels of sodium and water in the body due to ileostomy or extensive colitis.
A second study in England showed that most deaths occurred in the first year after diagnosis, yet most of those deaths were not from IBD, but from some other cause. A severe first flare-up of Crohn’s disease in the colon or the perianal area was also correlated with increased mortality. The authors also point out that older patients who are recently diagnosed with IBD may be at increased risk of dying.
One large study from Manitoba was found that people with IBD had an increased risk of death particularly after having surgery and in the first year after diagnosis.
A Word From Verywell
Overall, the IBDs are not generally fatal conditions, but they are serious diseases. While death from IBD is uncommon, it is still important to seek treatment and develop an overall healthy lifestyle. People living with Crohn’s disease and ulcerative colitis are particularly susceptible to complications, and the first year of diagnosis and the year after surgery are vulnerable times. While this is sobering information, the good news is that surgical techniques and treatments for IBD are constantly improving. People with IBD who are concerned about their life expectancy should talk with their gastroenterologist about how to reduce the risk of complications by receiving regular care and screenings.
